We generally don’t think of rare-disease advocacy as funny. But Sammy Basso, who died at 28, will be remembered for his ability to find laughter in almost anything.
A Johns Hopkins analysis commissioned by STAT shows that the rate of postpartum sterilization is significantly higher in Americans with sickle cell disease than in those without.
After Pfizer withdrew its sickle cell drug from the market, patients with the condition and their doctors were left scrambling to figure out what to do.
Part 3 of “Coercive Care” looks at how a federal regulation designed to prevent unwanted sterilizations can be a barrier to those who want the procedure.