Mark Medici

For a moment, there was silence. Olivia was 5 years, 10 months and 6 days old when she passed away in Annalee’s arms. It wasn’t until after Olivia was born that we learned we had passed a rare, deadly recessive gene to our oldest daughter. Born with mucopolysaccharidosis Sanfilippo syndrome type IIIA, Olivia had spent most of her life poked, prodded, in and out of surgery, in radiation, in chemotherapy, crossing the country on Angel network flights as we desperately attempted to protect the qual…